4.Q. Workshop: Intersex human rights and wellbeing - Part II: From ethics to healthcare approaches and policies

Abstract Intersex newborns, children and adolescents frequently are subjected to not clinically necessary surgeries other non-consensual treatments. According the UN Factsheet Intersex, “Intersex people born with sex characteristics (including genitals, gonads chromosome patterns) that do fit typical binary notions of male or female bodies”. Since 1950s, Western medicine developed a clinical model early treatments performed on intersex adolescents. In October 2005, an expert meeting elaborated Consensus Chicago, establishing recommendations for healthcare introducing new nomenclature: Disorders Sex Development, document criticised from activist academic perspectives. Human rights bodies, activists allies demand cessation genital children, recommending postponement these interventions until person can give informed consent. Furthermore, they highlight relevance providing access information medical records, continued psychosocial support, if needed. field, different approaches currently being discussed, including elaboration recommendations. The discussion in field studies includes review human bioethical principles, research practices, as well lived experiences, social circumstances needs people. This workshop is second part series wellbeing”. Part I “From frameworks ethics experiences” presented theoretical frameworks, ethical aspects experiences II policies” aims at opening up shared reflection health policies legal related needs. presentations include right autonomy consent Belgian practice legislation (Presenter: Dr. Pieter Cannoot, Belgium), presentation qualitative project perspectives people, parents, doctors psychologists regarding Ute Lampalzer, Germany), experience multidisciplinary team specialised Switzerland Cynthia Kraus, Switzerland), cross-cultural differences Germany Israel Meoded Danon, proposal agency-based Daniela Crocetti, Italy). Key messages questioning motivates healthcare. Activists, practitioners researchers call focus rights, consent, decisional autonomy, agency collaboration.